The Never Ending Sick Leave

wp-image-391466568jpg.jpgWhen you start to count how long you’ve already been on a sick leave and how it truly feels never ending… If something is a patience test, then this is, big ass time.

There’s no confirmed end to this yet, and that is starting to eat my spirit a bit, well honestly, I hate this to my core. My surgery was, 18th of May, and at the moment I feel like 2016 is going to be one hell of a yay for me. Obviously this post is me being filled with frustration and sadness and just anger that why a “simple” wrist operation turned a year of my life into what it is now.

When I got the news that my wrist is broken and needs a surgery last years Christmas week, I never ever thought that it will be this big of a life change. I understood that it is a simple operation that is a bit difficult to heal, or at least slower than others, but never did I think that it would be this. And then the wait to even get to the operation, those months from last weeks of last year to May, all that time when I had to reduce what I was doing at my work at the time, to people saying to me that don’t do that and don’t do this, to me feeling like I’m loosing a part of me, which I feel a lot at the moment too.

After the operation I thought that okay, this will take some time and then after those 6 weeks with a cast I’m pretty much good to go again and that my summer isn’t doomed and that I can start being “normal” again. That’s what I thought and believed and kept my spirits up with. But obviously it didn’t go like that.

The thing is, my recovery has gone as my surgeon wished it to go, but I just managed to break that one tiny bone that takes FOREVER to heal properly. It’s a bone that you can’t take risks with, or it needs a new operation. So I actually have to listen and believe my surgeon when she says that it needs a little more time, even when it is looking better all the time and like she wanted it to be.

But every time I hear that yeah, little more sick leave, just a little more, I seriously don’t see the good in that situation. I feel so shitty now, I just want to go back to being me, fully. Not this, some day I’m back me.

And the notion of how slow my body actually recovers from this all, is just tiring. You want to understand and you know the reality and the facts of why my running isn’t where it used to be, or why my body doesn’t respond as fast as it did last year to eating good and exercising, it’s a struggle to believe that those clothes that I love will fit me again, or that you look yourself in the mirror without feeling like yep, I would not mind looking a bit tighter. Some how it never even crossed my mind how massive of an impact one wrist operation could do to your whole body. It’s just a wrist, so why is it making my whole body react this massively. Yeah they had to take some bone of my hip but still?!

This year has been, once more, a test for me but not anything I was ever prepared for. It has been such a challenge mentally and physically that I even wish that it had been a knee or something like that. I have to battle my depression again, because this has been such a mental battle. And I hate that so much. I’ve lost my happy a bit and I’m tired of climbing back up, even though I know that I don’t want to sink either.

I’m afraid that loosing a year, will make my job opportunities shrink even more than they were before. I’m honestly afraid that I won’t find anything. Once this all is finally done. I’m afraid that I get stuck in this weird situation and just look how others around me move forward.

I’m tired and afraid of this all. I want to be able to be me, to be fully independent on my own and not have to worry about money ALL THE TIME, to feel like I have something to say and give, to feel needed.

I am trying to remind myself that there will be an end to this all, but right now it’s very damn hard.

This will get better, this will better, this will get better, I repeat in my mind, not sure if I even believe myself but I have to try.

 

Depression. Epilepsy. Broken Wrist. What’s Next? Mostly Good I Hope

Photo by Markus Kontiainen

Photo by Markus Kontiainen

That’s how it has been. Depression. Epilepsy. And now broken wrist. And the last week and a half I’ve had time to think about this all. Thinking if this is some sick joke that I’ve had to deal with all of these in just few months.

Yes, I’ve had depression on and off since I was fairly young, runs in the family. But the last few years I’ve gotten the hang of that one, and know and feel when I’m “falling” and know what to do about that. And I’ve had epilepsy since I was 17, though the last 3 years without the medication and for almost 22 years without any seizures, until just before last Christmas and a week and a half ago. Oh yeah… And that broken wrist. I’ve written how I’ve managed to fall on my face couple of times last fall, but I got the news of my wrist being broken since last October and needing an operation involving a screw and bone from my hip, just on the Christmas week.

So with all of these, plus having some major heart brake issues, my interest in this all started to be under a rock. Since I met with my surgeon about my wrist early January, I’ve been more than down with my mood. The news about when and how the operation will be hit me really hard. I was smart enough to not google anything, but with nothing to wait, I was blindsided by it all. Now I’m on the waitlist for the operation which might be in two weeks or in 6 months. And the fact that after it I’ll be in recovery for 3 months. I just didn’t expect any of that. I guess I thought that it’ll be a day and then I’ll do some training with a physio and be done. To be honest, I have no idea what I expected.

The fact that I’m not capable of being myself 100%, is very and has been very disheartening. Yes, I’ve probably been a bit over dramatic about it, but hell, the fact that going from very athletic and capable to needing to ask for help with the simplest things and not being able to use your left arm is a bit shitty feeling. But all through all those feelings I’ve reminded myself that I have it good, it’s going to get treated and there are so many millions of people in the world who aren’t in the position I am and still won’t complain, so.

But what I’ve also been, has been depressed, tired to the level of light burnout, lost in the puzzle of people and how they treat you, and with all that in me already, my good old friend epilepsy paid me another visit. On a day when I last needed it, not sure if you ever need that but yeah. And at that point I just was too tired to be interested in anything. That was it for me. I had nothing in me to fight anything anymore. I was mad, sad and just thinking What’s Next? Bring It! I don’t even care anymore! Which is obviously total bullshit, because I’m incapable of not caring, but even I was close.

And when I was laying in the ER of the hospital and my doctor comes and says that we need to start your medication for the epilepsy again, I don’t know, I just broke a bit inside.

One of the biggest things for me has been that I’ve been able to balance my life in a way the last few years that I didn’t need the medication anymore. And now, knowingly what I shouldn’t do and what will trigger it, I’m back in a place in my life where I have to put few meaningful dreams aside because of it. There went my dreams of finally being able to drive a license and being able to do those road trips I’ve dreamt for a long time, going somewhere alone in a car I can sleep in. There also went the dream of living as clean as possible, as the idea of needing to eat that strong of a medication makes me sad and like I have no control over my own life.

In a way I was and have been mostly mad or disappointed at myself. Why with all the knowledge I have about my situation and my past, I go and do the exact opposite? Why I stop all that have made me feel that good and balanced my depression to a level that it’s almost non existing? Why I stop caring about my diet and think that something would have changed with me needing certain amount of sleep to keep my epilepsy in check? In the end I’ve been sabotaging my own self.

Why?

The way my last year went from start to finish has definitely had a part in that. It started and ended with a heart break. And now learning more and more about my HSP (highly sensitive person) and introversion, I’m not even surprised how puzzled it all made me. I lost myself in all of that, without realising that I need time to heal, really heal. I healed but not fully in spring time with running, I was heading to a great direction but I fell for someone too early and that was too good to not dive head first. Why not, I tend to believe in love no matter what.

But when I moved back to Finland, I was just in need of a change and I got that in the form of a completely new and exciting job. But as I do, I dove head first, and forgot that now I really need those good balancing teachings that I’ve practised so hard for couple of years. But when you’re excited you don’t have time to concentrate on things like good diet, sleep and exercise, right?!

So my first epilepsy seizure, late fall, tried to remind me of certain things without me listening to any of it. Then the news of my wrist tried to calm me down a bit, but it only made me angry and teenagey. So I needed the universe to really stop me cold with my second and hopefully last epilepsy seizure, to hopefully make me understand that it doesn’t make me a bad person if I’m not willing to risk my health for something else. No one made me or expected me to do that, just to make it clear, that was all me. But the challenge will be from now on, from next Monday when I go back to work. To find that balance, really work on me and finding ways to feel better.

Maybe this is part of some 30’s crisis, that I didn’t have when I was turning 30, or maybe this is some pressure that comes from the world we live in these days. No idea what, but I feel a lot of times we’re supposed and expected to be almost immortal and capable of everything without sleep and personal boundaries. The social media pushes new this and that to us all the time, and you feel even when you don’t really feel like that in you, that you need to want something or be something else that you are, or more this or that. I can’t do all of that. I’m one of those who are way too sensitive to be in front of all that all the time and try to exceed. I have no interest in exceeding because that’s impossible. That’s not me.

I saw an interview of Adele when her new album came out and the interviewer was asking does she miss being in the spotlight or does she have her own squad. What she answered was perfect. She said that not really because it’s not real life, and those who think that it is usually tend to be assholes. And that she has a squad, the ones that truly matter and care, and that it’s really small, and has gotten smaller and smaller the more known she is.

Without realising, that’s exactly what I’ve wanted to do for some time. To go in the background so to speak and just do my job really well. Push myself forward in those things, like writing and being healthy and a good friend and person, but doing it for me, not for others. And what I’ve noticed is that my “squad” is really small but the quality of it is off the roof! There’s spots in there for few more good ones, but my trust is a bit shakey these days so I apologise if it’s not that easy to get in. So again, less is more, in so many ways.

Also, how I feel about all these physical things that have been shaking my balance, is still something I thought long long time ago, I got them because something higher knew that I’m strong enough to carry them. I’m embracing this all now, it’s not all fun and games all the time, but I am embracing this and what it brings. I can assure you that starting your medication again and it making you feel like you are in a cloud of deep tiredness and foggy head and nausea, is not the way you want to spend a week, but I keep moving forward. I just needed to let myself feel all of that. I can’t be afraid of things that I love. I can’t stop being me, even if something like this is “back”. I am me, because I have all of these. There’s nothing wrong with me, and if they make someone think again about if they want to get to know me better, then that’s their lost, not mine. I do love myself like this, “flaws” and all. They are not flaws, they are parts of me.

LOVE. GRATITUDE. FAITH IN BETTER. PMA ❤

I want to thank all of you who have been my support through this. Thank you to my colleagues who helped and took care of me after my seizure. I am very grateful for this all, thank you.